I am a member of a very exclusive club, but one you would never wish to join. And anyway, you can't unless you have been given the code - the genetic code. Membership of this club is handed down from family to family and pre-selected before you are born.
Huntington's Disease: a progressive, degenerative and incurable illness that destroys whole families as it passes from parent to child. I thought it would be me who inherited it from our mum - instead it was my brother.
What has happened to my life?
There is no time for me anymore and if I do get a break, I'm too exhausted to know what to do with it
Am I even allowed a life of my own?
lonely and so, so tired
can’t anyone see how much we’re struggling?
do all the services rely on me to sort it all out?
is no-one to help
is no-one else who can do this though
I do, it’s not enough but I am broken just trying to keep on top of things
can’t carry on like this, but I can't see any end to it I can't do enough to make it all right for him, I am failing him
feel so guilty
hate Nick and I wish he wasn't there
am a horrible person to have these thoughts Shut up and keep going.